Children’s Tumor Foundation Joins with UAMS Winthrop P. Rockefeller Cancer Institute to Pilot Clinic for Adults with Neurofibromatosis

By Marty Trieschmann

LITTLE ROCK—The Children’s Tumor Foundation and the Winthrop P. Rockefeller Cancer Institute at the University of Arkansas for Medical Sciences are pleased to announce plans for the first dedicated Neurofibromatosis Adult Clinic in the region.

The Children’s Tumor Foundation is the leading non-governmental organization dedicated to funding all types of neurofibromatosis (NF) research.

This newly established clinic located on the seventh floor of the Cancer Institute will deliver multidisciplinary care to adults living with neurofibromatosis. In addition, it will build clinical data sets to provide information that could inform the expansion of adult care and recruit and mentor new clinicians into the NF clinical care community. In conjunction with a pilot launching at the University of California Los Angeles (UCLA) later this year, the vision is to partner with hospitals across the country to open more NF adult clinics and make outstanding medical care accessible for the complex needs of adults living with neurofibromatosis.

https://news.uams.edu/2021/10/14/childrens-tumor-foundation-joins-with-uams-winthrop-p-rockefeller-cancer-institute-to-pilot-clinic-for-adults-with-neurofibromatosis/